What caused Canyon’s Cleft?
Honestly, we are not sure. With it being an isolated cleft God is the only one who knows why Canyon had a Bilateral Cleft.
Did you do something in your pregnancy to cause his cleft?
No. I was already on prenatal’s when I got pregnant. Most clefts are either genetics or a lack of folate.
I just found out a loved one is expecting a child with cleft. What should I say?
Great question! It is always tricky to know what to say to a loved one when they find out their new addition is going to have a cleft. Remember, a cleft does not define this child. This child was fearfully and wonderfully made. Let the parents know you are there to support them. Once the baby arrives compliment their eyes, their strength, and most of all their smile! Chances are you will be in love with the wide smile.
What surgical team does Canyon use?
Canyon sees Dr. Deven Griner and his team located in Provo Utah.
What can I get a new family who has a baby with Cleft?
Babies with cleft do need specialty bottles. Dr Brown Bottles have a specialty bottle kit that is great! Most cleft babies spit up a-lot. Think burp rags, bibs, and even rash cream. Also a Warmie! These things were life savers for us when it came to surgeries.
I just found out I am expecting a baby with cleft. What questions should I ask the surgeon?
It is always a whirl wind trying to figure out what you should know. Some basic questions to start off the conversation:
What is the timeline for surgeries?
What will your team be able to assist with during our journey? (Therapies, feedings, hospital support, ENT, and so on).
Are there any special requirements that need to be met before surgeries? (specifically weight requirements).
What method will you practice on my babies palate? (Have your surgeon explain their process and procedures in depth. Ask any questions you may have during this discussion).
What does recovery look like for each surgery?
Depending on the palate, will we use the NAM device, taping, or a Latham?
What therapies will my little one need pre and post surgeries?
Will insurance cover the cost of surgeries?
Are there any foundations I can look into to help with financial assistance?